- Wed, Sep 20, 2017 06:00 AM
46 Cabanda Street
Latitude: -27.4437, Longitude: 153.149
Seminar co-hosted by the Dementia Alliance International (DAI) and the Dementia Awareness Advocacy Team (DAAT) Topic: "Voices of Dementia" September 20, 2017: 10:00 AM - 2:00 PM Brisbane (AEST) Australia Venue: 46 Cabanda Street Wynnum West, QLD, 4178 This event is being co-hosted by Dementia Alliance International (DAI) and Dementia Advocacy Awareness Advocacy Team (DAAT). It will also be available online as a Webinar, for those who are unable to attend in person. About the hosts and event: DAI is a global advocacy and support group for people with dementia. It provides a number of online free services including peer-to-peer support groups, and works globally for the human rights and access to the CRPD for people with dementia and their families. DAAT is a local Brisbane group of people with dementia and their care partners, families and friends, working to raise awareness of dementia, advocate for access to their community and educate others about the needs of everyone affected by dementia. All the voices of dementia are important, and both groups work hard to ensure they are heard. Program Overview: 10:00 Registration and morning tea on arrival 10:30 Kate Swaffer - Human rights and dementia: a global perspective 11:00 John Quinn & Glenys Petrie – Think outside the box 11:30 Eileen & Dubhglas Taylor – Communicating with Dementia as an Entity 12:15 Emma Pitcher & Lisa Williams - The impact on children of a parent with Younger Onset Dementia 12:30 Caron Mallet: The importance of hearing and acting on the voices of people living dementia 12:45 -13:00 Panel session, chaired by Kate Swaffer 13:00-14:00 Lunch and networking BlueCare are very generously supporting this event. Please note: This seminar is a live event being held in Brisbane Australia. However, it will also be run as a live online Webinar, which will set up in a number of time zones, based on it being Wednesday September 20, 2017 from 10:00 AM - 2:00 PM Brisbane, AU. SEE BELOW FOR YOUR DATE AND TIME. Therefore, it will still be one event for everyone, e.g. Tuesday, September 19, 2017 (USA/CA) and Wednesday September 20, 2017 (AU/NZ/UK/EU). Unfortunately due to the time in Australia and it being a live event there, it may not be easily accessible to watch live due to the challange of time zones. We therefore hope to record it so it can be uploaded onto our YouTube channel to view after the event, and also apologise (again) to those in Europe and the UK for this unfriendly time. Full Program: 10:00 – 10:30 Arrival and morning tea 10:30 – 11:00 Kate Swaffer: Human rights and dementia: the global perspective About Kate Swaffer: Kate is the Chair, CEO and one of eight co-founders of Dementia Alliance International, the current South Australian 2017 Australian Of The Year, and a member of the World Dementia Council. She is a retired nurse, and published author and academic, and is an activist for global change, through the lens of human and disability rights. Kate has a MSc in Dementia Care (2014), BPsych, BA, was a chef and is also a retired nurse. About Kate’s presentation: Kate’s presentation will give a global perspective on why we need a human rights based approach to dementia, with specific reference to the recently adopted World Health Organisation’s Global Action Plan: A Public Health Response to Dementia. Kate has been advocating for human rights and access to the Convention on the Rights of Persons with Disabilities (CRPD) for many years, and will discuss what consumers want pre and post diagnosis, and outline ways that service providers can move from a medical model of care, to one that is rights based. 11:00 – 11:30 John Quinn and Glenys Petrie: We Need to Think Outside of the Box About John Quinn and Glenys Petrie: John is a retired Primary School Administrator and Glenys was an Early Childhood Teacher. John has started learning Spanish and along with his exercise regime, includes other activities to remain engaged with living. Glenys is his care partner, also living with disabilities. Through their advocacy, they both continue to educate others, and are both co-founders of DAAT and John is a member of DAI. John has a Dip. Teaching; B. Ed. M.A.C.E. Glenys has a Dip. Teaching (Early Childhood); a Grad. Dip., 12 years Admin and received an 'Excellence in Teaching' Award. About John and Gleny's presentation: John will talk about why rehabilitation should automatically be offered when people are newly diagnosed with Dementia. After all, it is immediately offered after a Stroke or a Heart Attack. However, should rehabilitation be as restrictive as just Speech/Language Therapy, Occupational Therapy, etc? What value do our existing skills and the joy of participation hold in motivating and engaging us, and therefore empowering us to live as independently and as fulfilling a life as possible? An excellent, personalised program will cater to the individual’s interests, skills, dementia symptoms and changing support needs. As a person living with Dementia, I still remember the activities that I enjoy, with laughter. So whether learning and applying new skills or established ones, let them also be my ‘Tools for Empowerment’. Glenys will present on how such a paradigm shift would have resulted in a far more positive outcome for John, which would have benefitted both of them. Together they will ensure we consider how much more we all (everyone & also the advocacy cause) could achieve with this approach, and also the long-term cost benefits from the micro to macro level (individual to organisations/Govts). They are both co-founders of DAAT. 12:00-12:30 Eileen and Dubhglas Taylor: Communicating with Dementia as an Entity About Eileen and Dubhglas Taylor: Eileen is an advocate for people with living dementia, and lives positively with young onset familial Alzheimer’s Disease dementia. She is an educator, retired psychotherapist, wife, mother, grandmother and friend. Dubhglas (Dubhg) is a retired social worker psychotherapist / educator and now a Dementia Advocate and Counsellor who partners with people living with dementia and Dementia Service Organisations to raise awareness and advocate on dementia issues. Eileen has a M HS (Hons) and Dubhglas has a Post Grad Dip (Counselling) and M. SocSc (Counselling). They are both co-founders of DAAT, and Eileen is a member of the board of DAI as secretary. About Eileen and Dubhg's presentation: Relationships often become strained in the communication process, especially when living with dementia. What is often missing is seeing that the dementia itself is a separate uninvited entity creating challenges in a relationship. It is the beginning of what is known as TRIANGULATION, a psychological system that can set the relationship up for failure. These communication patterns place the perception of Dementia as the “third party” accelerating possible conflictual behaviours between the PLWD and the Care Partner placing the relationship at risk. This presentation explores these patterns offering communication solutions for preventing conflict, power struggles, power plays and helping the PLWD and their Care Partner. 12:45 – 13:00: Emma Pitcher & Lisa Williams - The impact on children of a parent with Younger Onset Dementia About Emma Pitcher and Lisa Williams: Emma and Lisa are daughters of a mother who was diagnosed with younger onset dementia, who is now living in residential aged care. Emma is an Endorsed Enrolled Nurse (EEN). She initially trained in Dementia and Aged Care and now works in Adult Mental Health. Lisa is a Registered Nurse (RN) and has specialised with a Masters in Mental Health. About Emma and Lisa's presentation: Lisa and Emma's mother Barbara was a bright, chatty and bubbly women when the family noticed that something was wrong. Barbara started forgetting how to make the family's favorite recipes and couldn't write a shopping list. After 2 years of doctor's visits and tests Barbara was diagnosed with Younger Onset Alzheimer’s at the age of 60. In the years since Barbara's diagnosis life has changed for all the family. It has been a massive learning curve and an emotional journey. All of the family have ticked items off their 'bucket lists', made life changes for the better and learnt to appreciate family and life more. Lisa and Emma are now dedicated to advocating for their mum, breaking the stigma around dementia and raising awareness of Alzheimer’s and especially Younger Onset Alzheimer's. 12:30 – 12:45 Caron Mullet: The importance of hearing and acting on the voices of people living dementia About Caron Mallet: Caron is a Registered Nurse with over 30 years experience across private, public, and not for profit industries, specialising in Aged Care. Her passion is improving the lives and experiences for our clients as they journey through life. For the past 10 years, her work has focused on ensuring people live with purpose regardless of barriers and are surrounded by staff who will advocate and support their choices. This year her focus is centred on redesigning residential care to create dementia friendly environments where people living with dementia are enabled to live meaningful lives and supported staff and carers. About Carons’ presentation: BlueCare has a Memory Support Services Program that is aligned to our Blue Care Tailor Made Service Model that was developed by key experts, our staff and residents and their families. The objective are to see the person in their own right first, before their dementia, be empowered and treated as an equal partner, achieve everything that is possible as a valued member of society, be as independent as possible, make choices about all aspects of their life, be at the centre of the care they are receiving, be recognised for their uniqueness, skills and achievements and receive excellent health care and healthy living programs which enable the person to be ‘All they Can be’. BlueCare endorses the DAI Global action plan on the public health response to dementia and is hoping that the newly formed DAAT will be able to work with Metro South services to assist them to design services for the future. This event is being generously supported by BlueCare: Live life your way. If attending in person, the event is being held at: BlueCare Wynnum, 46 Cabanda Street, Wynnum West, QLD, 4178 Dates and times to attend as an online webinar are follows: Wednesday September 20, 2017 Start time (Australia/NZ/Asia/Indonesia, UK, EU) 9.30 a.m. in Adelaide; 10.00 a.m. in Brisbane, Sydney, Canberra, Melbourne; 8.00 a.m. in Perth; 12.00 p.m. in Auckland, New Zealand; 9.00 a.m. in Tokyo, Japan 8.00 a.m. Taipai, Taiwan 7.00 a.m. Jakarta, Indonesia 1.00 a.m. in the UK (apologies to our members in the UK and Scotland) 2.00 a.m. in Amsterdam, Paris and Budapest (apologies to our members in Europe). Tuesday September 19, 2017 (USA/CA) Start Time (USA/CA) 5.00 p.m. Pacific Time (San Francisco); 6.00 p.m. Mountain Time (Denver); 7.00 pm Central Time (Chicago) 8.00 p.m. Eastern Time (Washington DC, New York); 5.00 p.m. Vancouver, Canada; 8.00 p.m. Toronto, Canada 2.00 p.m. in Honolulu, Hawaii The WEBINAR will run for approximately 4 hours - you can also tune into individual speakers based on the program if that is helpful. Open the link for detailed times and how to calculate the time where you live, if not listed above: https://www.timeanddate.com/worldclock/fixedtime.html?msg=DAI-DAAT+Seminar%2C+September+20%2C+2017&iso=20170920T10&p1=47&ah=4 COST TO ATTEND: FREE Attending our events supports everyone connected to dementia, whether the person diagnosed, our care partners, or the professionals and research community who work to support us and improve our lives. 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